Sunday, March 24, 2013

Flying Under the Vulnerability Radar

Brené Brown speaking at TED

vul·ner·a·ble [vuhl-ner-uh-buhl] 1. capable of or susceptible to being wounded or hurt, as by a weapon; 2. open to moral attack, criticism, temptation

BUT...let me help you right off the bat by scrapping this dictionary reference above and instead, go straight to Brené Brown's meaning as you'll hear in the video.

vul·ner·a·bil·i·ty [vuhl-ner-uh-buhl-i-tee] 1. our most accurate measurement of courage; 
2. the birthplace of innovation, creativity and change (Brené Brown)

Now that we have that out of the way, I must again give an honorable nod to Brené Brown for her brilliant, straightforward and wholehearted work that continues to inspire me. Because let me tell you, if going through cancer, once, twice or three times doesn't make a person vulnerable, then I don't know what does.

There's so much vulnerability that correlates with a cancer diagnosis that I frequently don't know up from down. And I'll even go out on a vulnerability limb and share with you that I continue to feel exposed as I embrace the new changes about myself, my new perspective on life, friendship, my scarred body, my numb chest and my numb fingers and toes from the chemo. I frequently fall over from a standing position as if I were intoxicated and always joke it off with a 'no worries, I'm not drinking.' Walking around bald for months on end while looking like a ghostly, ashen version of my former self left me in one of the most vulnerable states of all as I endured stares, name calling and wide-eyed looks from children. And now my current struggle with vulnerability is focused on the end of the treatment road for me. There, I said it... well some of it. Enough for now.

And as I continue to question myself through this process, my writing and interactions with others about how vulnerable I 'should' be, my head often spins at an accelerated rate.  How much do I tell her? How should I say this? Should I gloss over this news? Can they handle it? And the biggest question of all, can I handle it?

My answer...HELL YES! This whole cancer gig has brought up a bundle of adjectives for me to chew on. And as a language therapist, I then typically start heading down the linguistic road of lexicon: exposed, tender, humbled, delicate. And then fleeting and flitting in and out of a Noun - Shame! (pause for reaction....). Yes, I said SHAME!

Because I felt such significant shame during my first diagnosis that I held 'it' in secrecy, swore people to secrecy and stopped telling people that I had breast cancer. I didn't quite grasp why I felt so shameful, and after watching Ms. Brown today on Super Soul Sunday, I realized how consumed I have been through each diagnosis with vulnerability and shame...until now. 

So, twenty years and a third breast cancer diagnosis later, I will purposefully choose to forge ahead and confront the 'Big C' in spite of feeling blemished, scarred and flawed. No more shame for me. I will go as far as to say that I will 'dare greatly' as Ms. Brown suggests.

I believe, that the path for me will continue to be full of vulnerability as it allows me to embrace my sometimes fragile self. It's the only choice I know.

So who's on board the vulnerability train with me?! 






Saturday, March 16, 2013

Why I Cry?

Me & Kathy Ireland
Unexpectedly, this fundraising breast cancer event threw me for an emotional loop and I felt as if I needed a life raft the second I met the sponsor's daughter, Kathy Ireland. With my initial intention of simply thanking both she and her mom for such a wonderful event and cause - The Barbara Ireland Walk for Breast Cancer Research, I barely uttered my name to Ms. Ireland when I felt tears starting to roll down my cheeks. "Hello Kathy, my name is Dee Anne and..... (oye, here come the tears!)....thank you so much to you and your mom for this wonderful event....(damn, more tears!)... so sorry....I'm crying... please, if you could just tell your mom thank you....(geeze, more tears?!).... I was diagnosed with my 3rd breast cancer a year and a half ago (Really?! More tears?)..... and....." (thank goodness, she started to speak so I could get it together!) "How are you doing?" she asked with a very present and compassionate look. "I'm OK, thank you. Again, if you could please thank your mom on my behalf....(freakin' tears!)... and thanks to you too." We hugged, stared at each other's faces and eyes for a few extra seconds, hugged again, snapped a quick pic and then parted ways.

Ah! Why did I cry? Not like I was diagnosed yesterday....unexpectedly....for the first time. This was round freakin' 3 of the 'Big C!' What was wrong with me? Get over it, I thought! But my emotions were colliding inside of me like the perfect storm.

But really, what is there to get over? Will I ever be over this crazy disease? I feel forever changed and like a fish out of water. I don't know up from down sometimes. What's normal? How am I supposed to feel? How am I supposed to act? What do I say for the 1000th time when someone asks how I'm doing but I can tell doesn't really want to hear about it because it's too painful for them. Oh, I'm so tired of saying how tired I am. Should I minimize my feelings to spare others instead? Or, do I just say that I'm feeling great and beyond excited that I'm finishing my treatment next month as everyone expects me to say, even though I'm not? But I kind of am. But not really. I'm just not so sure how I feel.

All I know is that there are some damn good people in this world like Kathy Ireland, her mom Barbara, our friends Sydney and Susan who we went out to cheer for this morning and all of the other walkers with their pink shirts on, bald heads and 'Team Jani' on the back of a group of black shirts.

I cry for me. I cry for them. I cry for the ladies (and men) who will be diagnosed on Monday. I cry for the 39,000 plus woman (and men) who will die from breast cancer this year alone. I cry for Lisa Lynch,  a woman whom I've never met but one who took her angel wings on Monday in her 30's after being diagnosed at age 28. I cry for my Aunt Charlotte and my Aunt Henrietta. I cry for Gammy, my partner's sweet grandmother. I cry for Kelly and all of the 'Angel Girls' that all passed away in their 30's when I was first diagnosed at 31 myself.

But as I shed my tears, I also salute the many warriors and organizations determined to find a cure like the Barbara Ireland Walk for Breast Cancer Research. I celebrate Ann Marie of Stupid Dumb Breast Cancer who refuses to stay silent and hide her pictures of her scars on her Facebook page. I honor the Cancer Center of Santa Barbara and all of my 'Purple Angels,' staff, nurses and Dr. G. I applaud the Busted Foundation for their fundraising efforts to support breast cancer patients. I bow to TalkAboutHealth for their online support to help people like me.   I praise too many people to list here but whom I will try to mention and honor as time passes.

So that's why I cry! So what. Let's just find a cure!


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Thursday, March 7, 2013

Herceptin #17: Gasp!

Me, Patrick and Cancer Warrior - Marion

Well, this treatment left the entire chemo room startled as I gasped so loudly in the middle of my infusion that it sent the whole chemo nursing staff starting to run my way. But, as I put both of my hands up in the air quickly saying "I'm OK! I'm OK!" - it made me realize just how attentive my purple angels are to me and to all of the other patients they so selflessly serve.

Now here's the funny part (ya gotta know with me, there's always a funny part). What the nurses weren't privy to before I let out my apparently loud gasp, was the 10-minute conversation we had prior to my breathy outburst of expression.  A fellow breast cancer warrior (Marion), her husband Patrick, Hil  and I, were swapping stories about all of the stupid things people have said to us when Marion divulged one of the most shocking statements I've heard to date. And not to get anyone in trouble or anything (her mom!), but man, people can really utter and hypothesize some inappropriate conjecture (AKA, say some stupid sh*t!) in the face of a health crisis.

With that being said, may I just say, WHO IN THE HELL, tells you that "maybe those chemo medicines will finally help you lose that extra weight!" Seriously?! I am not blowing smoke up your I.V. infusion pole here, this sorry statement is sadly true. But, PS mommy dearest, your daughter happens to be one of the most beautiful, tall, slender, fashionable women I have ever met in the face of cancer. And one that is truly rocking her beautiful bald look. And clearly, she doesn't have a single 'lb' to lose! Oh, and one more thing, her name is the name of one of my favorite cousins that I grew up with, so back off Barbie!

But after the chemo room staff stopped in their tracks, they looked at me with such curiosity and bewilderment until the head purple angel (Martha) said, "We take gasps very seriously around here!" Pause..... and then we all started laughing before I quickly explained the tale behind my sudden outburst.

Head Purple Angel - Martha

And lastly, I know you've heard this before, but I find this time a worthy moment to remind you to follow one of the golden rules in life: If you have nothing nice to say, THEN DON'T SAY ANYTHING AT ALL! Period. Done. End of story.

On a final note, may I say we all ended laughing so hard at all of the quips we have heard, that we finally just all sat in silence for a few seconds before looking at each other again and bursting into laughter in unison once more. And there you have it, laughter, one of the many silver linings of cancer.

So, with that, I'll just leave you with a link to my do's and dont's about what to say to a cancer patient along with a quote that you might find helpful next time you're feeling the need to speak your mind:

"Diplomacy is more than saying or doing the right things at the right time, it is avoiding saying or doing the wrong things at any time"



Thursday, February 28, 2013

Brain Tumor Crisis Averted!



I repeat, brain tumor crisis averted! Yep, you heard that one right. For over 2 weeks now, I have had many sleepless nights, butterflies in my stomach, a few grouchy moments and 'Google-itis' (see below):

[goo·guhl·ai·tIs ]  a pathological obsession with internet researching until all hours of the night about (in my case), brain tumors and metastatic cancer to the brain.

So, let me cut to the chase and break it down for you. I began having symptoms and side effects consistent with metastatic brain cancer a few weeks back so my oncologist took me off my new estrogen blocker meds, blah, blah, blah, wanted me to wait it out to see if the headaches diminished and VOILA! They didn't go anywhere.

The conversation that ensued next with my oncologist during my last treatment then went something like this:

ME: Hey, Dr. G., I'm still having those headaches.
DR G: Did you track them over the last couple of weeks?
ME: Yeah.
DR G: And?
ME: I still have them.
DR G: Well, then we need a brain scan to see if your breast cancer has metastasized to your brain and if you have a brain tumor.
ME: (Saying nothing but thinking... Did he just used the words 'brain' and tumor' in the same sentence?)
DR G: OK?
ME: Okaaay. (Insert deafening silence here)

So, fast forward a couple of weeks and one brain scan later, and now a new conversation with Dr. G. over the phone yesterday and....

DR G: Well, we got the results and the good news is that there are no signs of metastatic breast cancer or any brain tumors. But...
ME: (Thinking again...AWESOME!!....uh....what? "But?")
ME: Oh good!  (insert brave voice here)
DR G: But, your brain looks older than your age
ME: (Thinking.... he must mean WISER, not older! Duh.) Ooookaay?
DR G: And...
ME: (Still thinking....And? There's more?)
DR G: There are some white spots that look a little suspicious and might be consistent with MS or a stroke
ME: (Thinking yet again... Who the hell cares about a damn stroke, I don't have a brain tumor!!)
DR G: So, I am calling my best neurologist now (can't for the life of me recall his name - still celebrating in my head about no metastatic cancer and brain tumors!)... so I can get you an appointment with him so he can figure out your headaches and these white spots
ME: Ok! Great! Thanks so much! Bye-Bye!

So there you have it. My celebration of the week. No brain tumors - CHECK. No metastatic cancer - CHECK. White spots - CHECK. Stroke - WHATEVER! MS? - YEAH RIGHT!

In the meantime, enjoy the pics, the video and me on Ativan for the brain scan!

Nighty Night!





Friday, February 22, 2013

Herceptin #16: Just Another Day at the Spa!


My friend and sister-in-cancer Carla, suggested that we should call our trips to treatment 'A Day at the Spa.' She goes to a spa in LA called City of Hope while my spa further up the coast, is called the Cancer Center of Santa Barbara.

After my brilliant friend advised that we use this new terminology, I quickly mulled it over and agreed, this is totally like a day at the spa! I get to sit in a lounge/recliner chair, I'm brought warm blankets to snuggle in, I'm greeted and pampered like I'm an A-list celeb, I get to hang out with some pretty awesome peeps (Martha, Debi, Kimba, Socorro, Amber), a lady comes around offering tea, coffee and treats and if I'm lucky, I get to sneak in a short nap while I relax. So yes, this is indeed a day at the spa!

I also had the lucky chance encounter to sit next to a new day spa guest and her groovy husband, which added greatly to my spa treatment experience. Being around others in this....uhm....'sisterhood,' makes my day at the spa even more meaningful.

So hats off to all of my fellow spa guests because this signature treatment left me with a more settled feeling that I really needed as I am still making every attempt to make friends with the side effects and this journey. Now if they could only serve up a little champagne to go with that Herceptin infusion bag, it would round off the whole spa treatment experience ever so perfectly!

Lastly, it goes without saying, that I think the Cancer Center of Santa Barbara ROCKS! Thank you to my wonderful Purple, Chemo Angels along with Dr. G., Amanda, Martha (who always takes 2lbs off my weigh-in!), Christy, Sam, Tammy, Joanna, Elvira and all the gals at the front desk. You make my treatments at the spa, well.... faaaabuulous little darlings!

Saturday, February 16, 2013

Stupid Dumb Breast Cancer


Stupid Dumb Breast Cancer is right! And when Ann Marie Giannino-Otis wrote to me, telling me that she would love to share my journey and blog on her Facebook community page, I said, "hells yeah!" I wrote her back immediately and thought, this uber spunky gal has got it going on. Great attitude - check. Passionate - check. A breast cancer sister with a cause - check.

Fast forward, she posted a profile of me on her Facebook page and there you have it. Two total strangers who have never met before, live on opposite ends of the country, but are distantly and immediately connected by this Stupid Dumb Breast Cancer! She calls me 'Momma' and 'Sweet Thang' and I call her 'girlie' - enough said.

So check it out, check out Ann Marie's blog, LIKE her Facebook page (she's VERY likable!) and buy one of her Stupid Dumb Breast Cancer t-shirts which are very cool just like her!

Most of all, support her, support me and support finding a cure to this very stupid disease!

Wednesday, February 13, 2013

Lent 2013: Bite Me Side Effects!


Still falling back on my pre-Hindu, Catholic days, I have decided for the second year in a row, to give up something substantial for Quadragesima (Lent). Last year, I made the commitment to give up cancer, so this year, as you can imagine, my giving-up process is yet again, related to the Big C. So let's get to it shall we?

Still struggling through these blasted side effects and days on end of spending full days and time in bed, that's exactly what I have decided to give up. Not to go against Father O'Neary and the nuns that pressured my young Catholic girl, but screw you pile of side effects! Bite me nausea, joint ache and migraines!

And there you have it, no more side effects! That's what's for Lent. So thanks to the big guy (or gal!) upstairs. I am praying to the side-efects-Gods as I perform my Signum Crucis (that's good 'ol Latin for crossing/blessing oneself on the chest, Catholic style) as I kick off Lent 2013.

So, in the name of the Father, the Son and the Holy Spirit, let's rock 'n roll Lent.